Whole Care Network

Meet family caregiver Adrienne Provost. Adrienne lives in Chicago and is a mother of three children. Her youngest, Caroline, has a rare genetic disorder called Epidermolysis Bullosa, commonly referred to as ‘EB’. In this episode, we learn more about EB and how this family works together as a team. We also learn about Caroline's Make a Wish event and the rare disease advocacy work that Adrienne does with Harmony 4 Hope.